Dear Open Humans members!
We are currently in the process of working on a Code of Conduct that should cover both Open Humans as platform and all of its communication structures as well as the projects that are run on Open Humans.
By including projects into the Code of Conduct we hope to set clear expectations to both project members as well as project leads on what kinds of behaviors we hope to see on Open Humans and which we deem unacceptable. Through this we hope to make sure that participants of Open Humans - who do not only donate significant amounts of personal data but also of their personal time - are treated in a fair and equitable way.
We are looking for input on drafting the Code of Conduct - from all of you! Through this we want to make sure that the whole community has its say in how to shape what kind of community Open Humans as an ecosystem represents. In particular, we’d like to hear about potential misunderstandings or abusive behavior that are unique to our community - which includes academic researchers, citizen scientists, open source developers, and patient communities.
We are especially interested in hearing from you about three things:
- What would be exemplary behavior that projects on Open Humans can show towards you as a project participant?
- What would be some of the negative scenarios to avoid on how project organizers and participants interact?
- Can you imagine other negative interactions in the community we want to prevent?
Please leave your ideas below, so that we can include them in our Code of Conduct.
Thanks so much,