I’m posting a review request for the nobism Ubiqum project which is applying for project approval on Open Humans.
This project is setup by me, as a Cluster headache patient to be able, to do our own research with fellow patients.
I’ve build a Diary-app that we will be using as group, to collect data about our symptoms and treatments. Our goal is to find out the effectiveness of our treatments. By knowing those, we hope to shorten our journey to a Cluster headache free future.
I’m now finishing testing of the app and the connection to OpenHumans, so we can store our data.
This Project is led by Ubiqum Data academy and they will support us in creating our own, personal report with analysis of our personal data and a report were we look at results of all data shared. This is were our own, patient driven research starts.
Although this project is setup for, and by Cluster headaches, its can be used by any patient group trying to setup their own research. The nobism app can be setup for any combination of symptoms, treatments or diagnoses.
Data generated by a user in the app, is ONLY stored on the device of the user, or, if the user creates an account and connects with OpenHumans
Project link: https://www.openhumans.org/activity/nobism-ubiqum-cluster-headache-project/
Website: https://www.nobism.com & https://www.ubiqum.com
(*without OpenHumans connection)